News - April 2019

In April, Lisa attended a Federation of Master Builders Awards evening at a hotel in Oxford where she was presented with a cheque for £2,000 as a donation to the group to help us put on events for families. Such an incredible and overwhelming start to our fund raising activities.

Bestway Builders become our first sponsors and pay for t shirts for committee members and fund raisers. We are very grateful to them for their support and generous donation

On April 17th Synergy Medical held a cake sale at their offices to celebrate World Haemophilia Day and raised £200 for our group. A big thank you to their team who made us feel very special by supporting us.

To mark the end of the week in which we had World Haemophilia Day in 2019, on a scorching Easter Saturday, myself and some friends climbed to the summit of Mount Snowdon to raise money and awareness for the Local Families with Bleeding Disorders group.

After a year of tests and worry about bruising, our little boy was diagnosed with severe heamophilia B at the end of 2017. Thrust into the world of bleeding disorders, the local bleeding disorders community became a lifeline of support and advice.

So why Snowdon? Well, I'm pretty rubbish with heights, but I wanted to show my children that anything is possible with the right mindset and encouragement. The sense of achievement was fantastic, and the reward of a Snowdon ale at the foot of the mountain made the descent much quicker than the climb!

We are really excited to have been accepted as part of the Genetic Disorders UK Partnership Network. This means we will be able to hold charity events to support GDUK and gain greater awareness of our group via their website and network. You can see our group listed here.