We were established in March 2019 and since then, have grown rapidly to over 200 members and become a registered charity. Our members live with mild, moderate and severe forms of Haemophilia A, B and vonWillebrands but, we welcome those with other bleeding disorders too. We believe that sometimes, parents, carers, siblings or children living with a bleeding disorder just want to connect with others experiencing the same challenges that their condition brings. It is therefore our goal to offer "support for families, by families". Registered Charity: 1186979 |
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Local families launch their animation about the powerful subject of self advocacy at an event held in London. More information can be found here as well. | |||
info@bleeding-disorders.co.uk | |||
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